Friday, June 19, 2015

An Analogy

 
Thomas is the absolute light of our life, a constant joy and adventure.  I'd never known my heart to swell so fully until I met him.  

But I have a tough time explaining to people our life, our every day, with a son with severe hearing loss on the Autism Spectrum.  It's nearly impossible to explain our days and make it relate-able to someone who's on the outside looking in. It's also difficult to put into words how we are coming to grips with the reality that we've been handed. I know it's frustrating for those in our life who want to understand better in order to be present. 

This essay is a wonderful analogy:
oxox Mare


4 comments:

  1. What a powerful piece, thank you for sharing all you do. You are all blessed to have each other xx

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  2. What a great essay. Thank you for trying to make it clearer for us.

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  3. Wonderful analogy. As a retired SP ED Teacher and Administrator, one of the hardest parts of my job was explaining to parents that indeed their child had a disability. I think most of them already knew in their heart. It's hard explaining that a child can learn, but that a different way of teaching is needed. What is really hard is finding a way to teach children that works in the school setting and in the home environment. What a blessing that Thomas has parents who will advocate for him and who have the know how and persistence! Thanks for sharing!

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  4. I also feel this way about raising my three children who have been adopted from the Foster Care system. thanks for posting this.

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